The worst thing about anyday is walking into the hospital in the morning. We know how she was when we left but have no idea about what we are going to be facing in the morning. Today, we walked into better stats (heart rate, blood pressure & oxygen levels) then what we had left the night before which is a great feeling. Good days are so much easier (obviously) and let us have a little bit of more normalcy in our lives. We spent the day taking turns with our parents at her bedside. My dad, Lori & Ty left around 3 today to go back to SLO. Dan's parents will be here until Tuesday morning. Jess, Justin & Janna also visited us today which was a great surprise. It's nice having people around. It helps us take our minds off things for awhile. Again, a much easier task when it's a good day.
Today was all about maintaining stability. They have been adjusting her pressure meds and vent settings all day. Her lung X-ray also was significantly better then it was this morning. She is on a lot of support but she is still alive. I have to believe that means something. When I get really down, I've decided to picture her as a toddler, running around in a pink tutu, those cute pink baby crocs and her hair in pigtails. (I've decided she's going to have brown hair with a tint of auburn.) It helps.
We are lucky in the fact that Naya is so well-loved by the nursing staff here. Many nurses have stopped by our room today and told us that they are praying for her and can't stop thinking about her. They are so wonderful here. Her primary nurses are spoiling her with newhair bows and blankets. I know yesterday was upsetting for everyone here and no one is quite sure what is going to happen. That's really frightening.
We are going to stick around the hospital for another few hours before we head back to our "home" at the Ronald McDonald house to try and sleep for a few hours (my thoughts wouldn't shut up last night, so I got absolutely no sleep.) I only hope that she can maintain where she's at and has no troubles throughout the night.
Jamie,
ReplyDeleteThank you for blogging about this experience. I always have Naya and your family in my thoughts and this is a wonderful way to know how Naya is progressing. Hopefully you will sleep a bit better tonight while Naya works on healing. I know this will be a long process but everyone is pulling for Naya and will offer continued support.
I am so glad you are having a positive experience with CHLA. Having great doctors and nurses who are invested in your family and your journey is priceless and is very rare. I work with more babies and toddlers than I can count who have spent countless hours in the NICUs and PICUs all over the state. When you and Naya are out of the hospital I have a super goofy family in Nipomo I would love to hook you up with. They are hilarious and really just want to process what their daughter went through with another family. It may be something cathartic in the future.
I will offer again, if you need anything for Ty, please let me know. It could be a playdate, dinner, we could take him to LA to visit (and then to play somewhere down there), whatever you need.
Sweet dreams,
Heather
Jamie,
ReplyDeleteI am so glad that you are doing this :) We're always wondering how things are going, and you've always been a great writer! I'm glad you found a way to keep us informed and a way to get a little release from all that happening. We continue to pray for baby Naya, you, Dan, and Ty. Lots of love to all of you!
(and...It makes me smile that you've decided she's going to have brown hair with a tint of auburn)
Keeping you in our hearts and prayers,
Holly, Roger, and Savannah
First I'd like to thank you for taking the time to blog. It helps in every aspect from being therapeutic for you and keeping us informed for us. And don't ever worry about spewing. You are human. We are all here for you. Well, on this blog. I don't think we'd all fit into the hospital room.
ReplyDeleteSecond, I know from my daughter being at the Children's hospital in LA. The staff is outstanding. They all have a heart for children and I wouldn't be surprised if they too were praying as hard as we all are up here on the coast.
It is wonderful that you have people around you to be there with you and for you so you can rest. Please make sure you take care of yourself. Naya need's a strong and healthy momma to take her home when she's ready.
Charlene