I think this may be a short entry today. Naya had another great night last night. Not much fluctuations in her blood pressure or saturations for the first time in a longgggg time. When we came in this morning her stats were beautiful and she had lost even more weight. We finished off the day yesterday with a -215 in fluid intake/outtake. It was actually a pretty quiet day here. It was so quiet, it was actually eerie. The monitors are set to go off whenever one of the patients stats fall below a certain range that their doctor has set for them. We barely heard those noises all day. We actually only heard them at the end of the day because she had another blood transfusion and her blood pressure kept going up! Apparently, my daughter is a vampire because she really, really likes the blood transfusions. They had to aggressively come down on her pressers because her blood pressure was so high (we had to come up again after the transfusion was completed but that was to be expected). We are now sitting at a comfortable level for pressers and they should be coming down even more tonight. One wonderful sign was that despite the drop in her blood pressure after she got the blood, her pulse and her oxygen saturation remained consistent. This is almost unheard of for Ms. Naya, the bubble beard. It was amazing - she was blowing bubbles all day and they would land on her chin and form a beard of bubbles. Like I said, she is a talented little girl.
Right now, her stats are still looking great and her oxygen saturations look better than I have ever seen them. She is also looking at another -200+ fluid input/output day. I can't say it enough how happy and proud of her we are right now. We are truly proud of our little miracle. Everyone here is rooting for her and it was truly amazing how the mood was changed in her room today. Much lighter with a lot of laughter, even from her attending doctor! I was able to get a lot of work done and we were all sitting here, a little bored. It was actually a really, eerily quiet day today throughout the entire ward. It's crazy how quiet and calm can start to feel weird. We were also lifted from isolation (which she was on because of the bacterial infections) so we almost got a roommate today. I told them no boys though because she is not allowed to have boys in her room. The baby ended up being put in the room next door (not because of me though) because that room was completely empty and it is a little preemie coming in. Oh well, at least we still have this whole room to ourselves! (We literally have the biggest room in the whole ward - I call it Naya's penthouse suite.)
Dan got me a homework assignment today too. The manager was in here earlier working on the parents NICU directory with the charge nurse working in Naya's room. She was asking for our opinion and Dan suggested that there should be a note from a NICU parent in the packet to give it a more personal touch. Guess who gets to write that now. Thanks hubby!
We also had something strange happen to us on the way back here from dinner tonight (we were walking back from happy hour at Home Restaurant in Los Feliz). We were stopped by a hipster mustache guy who told us we couldn't walk in a certain part of the sidewalk because it was too dangerous. We were super confused because there was nothing there. He then said they were shooting a movie and that's why we couldn't walk there. Again, we were super confused because there was NOTHING there. So we walked on it anyway. Oh, Hollywood. Gotta love you. I will have to walk out tomorrow and take a picture of the gigantic Scientology building that is next door to this hospital. That will really show how special this place is.
Good night everyone. Please pray that we have more days like the past two and that the corner is finally being turned. We appreciate you all!