I hate having to think up titles for these things so I'm not going to anymore unless I can come up with something poignant. I think every single one of these posts could be called Rollercoasters. Today started off all right. Naya had a little dips in blood pressure over night but all-in-all, was able to maintain stability most of the day and they were able to bring her blood pressure meds down. She started to dip around 5:00 and went way down around 7:00. I should mention that from 6:30-7:30, we are not allowed to be in the room as it is shift change. Her nurse had to raise her meds up to maximum levels again to make her pressure go up to where it is at right now. I don't understand why this happens every single day. It kills me because they don't know for sure as well. Logic tells me that it happens because her heart has been working so hard all day that after a while, it just can't take it anymore and crashes.
Her lungs saw a teeny, tiny almost non-significant level of improvement today that was reflected in the C02 levels in her blood and they were able to adjust the vent levels a smidge. I almost wouldn't mention it but I am clinging to anything at this point. If she can continue to maintain a good C02 level, they could keep slowly weaning on the vent, which would also help her heart. I need her to do this. The one truly positive thing of the day was that she peed a lot both today and yesterday. We are not at negative fluid levels yet but getting closer. They are going to start her on a different dieuretic to go along with the one she's already on and see if it does anything. We need to get this damn edema off of her so her poor heart and lungs can get some relief. She may have a chance if we can do this.
As for myself, I had a pretty rough day. Dan and I are talking to the social worker here on a daily basis now and it's causing us to deal with things that we may not want to. It hurts to talk about the what ifs but I know it's necessary. My faith and strength got tested a lot by this today and it definitely affected my mentality and I shut myself off a bit. I wish I wouldn't do that but it's the way I've always dealt with hard things that come up in my life. I feel a little bit better right now though, which is why I waited until this point to write this.
I do want to thank everyone for all the Words with Friends requests too - I couldn't believe how many people responded. (That also scares me because that means a lot of people are reading this and I am paying absolutely no attention to grammar or spelling. Sorry about that.) Dan appreciates it too and he says "keep it coming." My dad left today but Dan's parents came this afternoon. They took us to dinner at the best burger place ever called Umami Burger. If you are ever down here in the East Hollywood area, go there and have the Manly Burger (seriously, that is what it is called.) It is literally the best burger I have ever had in my life. Good beer and sweet potato fries make it the perfect place.
As always, please keep the prayers and positive thoughts coming. More pee, please! Thanks again for all of your support. It truly overwhelms us.
PS - This is Dan's way of killing time today. This is just one of the animals that watches over her in her bed.